Saturday, December 12, 2015

Ground Control to Major Tom

      Today is another transition in my life. A dude from LiftSystems is coming to install a ceiling track to help me in and out of bed every night, which will improve Chelle's quality of life quite a bit now that she won't need to lift my heavy ass. The thought of playing the Crane Game every night with my body has got me feeling strange if not introspective.
      It took me a long time to open up about my ALS and really communicate all my feelings, worries and anger that go along with it. Prior to opening up in these blogs and being true with my friends and family, ALS was tearing me apart on the inside. I was always a guy who kept my thoughts and feelings close to the vest, unless I had four beers or so, then my emotions would explode and usually make someone and/or me cry. 
      Knowing that one day this bullshiit disease may come after me and possibly my voice is all the more reason for me to be as clear, effective and purposeful with my communication. I don't have time to lie, to put on a front, or to internalize my feelings. I do however have time to tell you all how much I love you, how much I depend on the people in my bubble that make life as "normal" as possible for me. I do still have time to teach kids how to read and decode and how to add and subtract fractions. I do have time to answer questions about ALS, no matter how personal, to advocate for people like me. So keep the questions coming. I will speak "baby talk" to Arik Kristoffer when he is born in the coming days and blow raspberries on Abram and Allen's head. I will shoot you a glance in a meeting that says it all. I will toast your successes and 
comfort you in times of sadness. I will speak God's Grace. 

3 comments:

  1. I love you, Kris!! I miss you all the time! Can't wait for our next trip up to shoot the shit and make memories.

    ReplyDelete
  2. Kris, Im so proud of you!! When I opened up about ALS and all I was dealing with from a spouses side, it was so healing. Mark use to always ask for Gods peace every single day...many times in a day. He had that peace and handled his journeylike a hero...just like your doing. Love you Kris.

    ReplyDelete
  3. Kris, Im so proud of you!! When I opened up about ALS and all I was dealing with from a spouses side, it was so healing. Mark use to always ask for Gods peace every single day...many times in a day. He had that peace and handled his journeylike a hero...just like your doing. Love you Kris.

    ReplyDelete